Showing posts with label Phantosmia. Show all posts
Showing posts with label Phantosmia. Show all posts

Sunday, March 7, 2010

Only the nose knows...

So, the official update in my nose is....wait and see.

I had a couple MRI's and they found a "thing" on my olfactory nerve. They think it might be an arachnoid cyst*, but they haven't told me that for sure. And it's very small. (If you go googling these on the internet, you will find really big ones in people's heads.)

They want to do another MRI in a few months and see if there is any change.

That's where we are.

The stinky smell comes and goes. And we will wait and see!

At least it's confirmation that I am not crazy. Well, on second thought, that might not be true. It's only confirmation that I was not imagining a smell! Well, that's not exactly true either, because my brain IS imagining a smell since something is pressing on the nerve and there is not an actual thing in my nose that smells bad.

It might MAKE me crazy....:)

*I was really fascinated when the doc used the term arachnoid cyst. I first imagined a spider-like cyst with all eight of its legs wrapped around my olfactory nerve, clinging on like crazy. But, when I looked up how the term "arachnoid" came to be, it is not describing the shape of the cyst, but it is a cyst that is in the arachnoid membrane of the brain. It is called arachnoid because that membrane looks like a spiderweb.
Arachnoid Mater http://en.wikipedia.org/wiki/Arachnoid_mater
Arachnoid Cyst http://en.wikipedia.org/wiki/Arachnoid_cyst 
Arachnoid Cyst Surgery. Warning! Ick Factor here! But I thought it was really cool how you could see just how "cob-webby" the arachnoid membrane really is. http://arachnoidcyst.org/surgery.php

Friday, January 29, 2010

Phantosmia

No, it's not a new Disney movie.

It's the name for that damn smell in my nose. Phantom smell. AKA parosmia. My brain is creating a smell and I also have a reduced sense of smell (hyposmia). (Although thank god I am still greeted by a wonderful aroma as I walk into a Peet's Coffee.)

Read this great article by Jane Andrews and it tells my story–although hers has been going on longer than mine. I could only wish that my smell might sometime change to be pleasant, but not at the risk of it smelling worse than it does now.

"A Pungent Life: The Smells in My Head" from the New York Times.

Also, a fairly easy-to-read medical journal article by Dr. Donald Leopold:

Distortion of Olfactory Perception: Diagnosis and Treatment

I had an MRI today and the only thing it showed was an "assymetry to the olfactory nerve." (OK, the doc didn't specifically say it, but I assume they also found a brain, not straw.)

More tests coming up.